Post by Archief on Feb 7, 2014 10:24:12 GMT
(archief van oude forum oms.yourbb.nl)
libello
bron: www.overcomingmultiplesclerosis.org/Community/What-Others-Say/
libello
Don't give up on this plan
I’ve just come back from my annual check up with my Neurologist and wanted to share my positive news!
I’ve been following George’s plan for the past year and a half (started mid 2009). When I had my initial meeting with my neurologist to get me on a drug, he scored me a disability score of 5. Last year, after four or five months on George’s plan, he scored me a 3 with one mild relapse during that year. I told him then that the next time he saw me I’d be a 2 with no relapses. He just gave me a sympathetic smile.
So, today I met with the nurse. We had a chat and ummmmed and ahhhhed over my slight glitch in November where I wasn’t well. She then established that it probably wasn’t a relapse, just a lot of stuff going on in my life which exasperated my symptoms for a few days. The doc came in and did all those wonderful tests and sat down. There was much muttering and discussion between the two of them and then it was established that I have in fact lowered my score to a 2! Yep, a TWO, with no relapse this year.
My balance, eye test, cognitive and those fun things like the old bladder is now fine and honky dory. Everything has improved!
After looking at their notes and my notes, it would seem that my fatigue is the bugger of all evils and their feelings are that my symptoms flaring up is more to do with the actual fatigue rather than relapses. When we discussed how I manage the fatigue, it would seem that practice of mindfulness is the best thing for me. If I don’t meditate, my fatigue creeps up and bites me. Also, I need to exercise where possible. I couldn’t walk to the end of my street in the beginning, I now walk to work which is 4 kms away.
So, really I just wanted to say that for me, things are looking up and I wholeheartedly believe that next year there will be even more of an improvement and they will score me 1 or at most a 1.5. My right side is weak (has been since the first major relapse) so I’ll focus on building up my strength on that side again.
It has not been an easy road and I’m not always up beat and positive. There are days where I just don’t even want to get out of bed, but the reality is, slowly but surely, I am improving. It’s really worth sticking with this plan.
I sincerely hope that others are doing well. Don’t give up on this plan, keep going. It will be worth it.
- Laura Dempsey
Jan 2011
Wellington, New Zealand
I’ve just come back from my annual check up with my Neurologist and wanted to share my positive news!
I’ve been following George’s plan for the past year and a half (started mid 2009). When I had my initial meeting with my neurologist to get me on a drug, he scored me a disability score of 5. Last year, after four or five months on George’s plan, he scored me a 3 with one mild relapse during that year. I told him then that the next time he saw me I’d be a 2 with no relapses. He just gave me a sympathetic smile.
So, today I met with the nurse. We had a chat and ummmmed and ahhhhed over my slight glitch in November where I wasn’t well. She then established that it probably wasn’t a relapse, just a lot of stuff going on in my life which exasperated my symptoms for a few days. The doc came in and did all those wonderful tests and sat down. There was much muttering and discussion between the two of them and then it was established that I have in fact lowered my score to a 2! Yep, a TWO, with no relapse this year.
My balance, eye test, cognitive and those fun things like the old bladder is now fine and honky dory. Everything has improved!
After looking at their notes and my notes, it would seem that my fatigue is the bugger of all evils and their feelings are that my symptoms flaring up is more to do with the actual fatigue rather than relapses. When we discussed how I manage the fatigue, it would seem that practice of mindfulness is the best thing for me. If I don’t meditate, my fatigue creeps up and bites me. Also, I need to exercise where possible. I couldn’t walk to the end of my street in the beginning, I now walk to work which is 4 kms away.
So, really I just wanted to say that for me, things are looking up and I wholeheartedly believe that next year there will be even more of an improvement and they will score me 1 or at most a 1.5. My right side is weak (has been since the first major relapse) so I’ll focus on building up my strength on that side again.
It has not been an easy road and I’m not always up beat and positive. There are days where I just don’t even want to get out of bed, but the reality is, slowly but surely, I am improving. It’s really worth sticking with this plan.
I sincerely hope that others are doing well. Don’t give up on this plan, keep going. It will be worth it.
- Laura Dempsey
Jan 2011
Wellington, New Zealand