Post by Archief on Feb 7, 2014 13:37:44 GMT
(archief van oude forum oms.yourbb.nl)
libello
Geplaatst: 16 sep 2013, 16:03
bron: www.overcomingmultiplesclerosis.org/Community/What-Others-Say/
libello
Geplaatst: 16 sep 2013, 16:03
MS in a nutshell
I was diagnosed with MS (multiple sclerosis) in 1998 after four years of testing and wondering. The MS was relapsing-remitting and for some years it was easy to put my head in the sand and imagine it was all a terrible mistake. The effects were minor at first – balance problems, clumsiness, pins and needles but doesn’t everyone get that?
I refused to be put on any injections and just kept living my life around the occasional (increasingly troublesome) glitches my body brought up. After a while fatigue was a regular visitor and I could easily walk shorter and shorter distances.
Finally, the day came when I couldn’t ignore it any more; my mobility was getting progressively worse. I couldn’t walk at all without great effort and a walking stick (it was purple with hot pink bubbles, so that was something). My neurologist put me on a three day steroid treatment and suggested I might have progressed to secondary-progressive MS. I was horrified and this got me on my feet.
I had to ‘come out’ to friends and reveal that I had a health problem (I had previously only told family). One friend pointed me to the Gawler Foundation which led me to George Jelinek, his first book Taking Control of Multiple Sclerosis and a week long MS program at the foundation.
I was so relieved when I first read George’s book that I cried. The research was solid and the case for lifestyle change strongly argued. This was combined with George’s touching personal story.
Armed with information and inspiration from the book and the program, I went on my way.
That was in August, 2009. I’m happy to report that I’m doing very well, indeed. I no longer use the stick and I recently went for a six kilometre walk on the Mornington Peninsula.
A final note on serendipity:
The most challenging of all for me is learning about the mind and spirit and how they connect with the body; and the universe?
If I hadn’t had that terrible exacerbation where I couldn’t walk, I wouldn’t have told my friend I have MS and she wouldn’t have told me about the Gawler Foundation, who wouldn’t have led me to George’s book…
Serendipity – no such thing?
- Elizabeth Reichhardt
Jun 2010
Melbourne
I was diagnosed with MS (multiple sclerosis) in 1998 after four years of testing and wondering. The MS was relapsing-remitting and for some years it was easy to put my head in the sand and imagine it was all a terrible mistake. The effects were minor at first – balance problems, clumsiness, pins and needles but doesn’t everyone get that?
I refused to be put on any injections and just kept living my life around the occasional (increasingly troublesome) glitches my body brought up. After a while fatigue was a regular visitor and I could easily walk shorter and shorter distances.
Finally, the day came when I couldn’t ignore it any more; my mobility was getting progressively worse. I couldn’t walk at all without great effort and a walking stick (it was purple with hot pink bubbles, so that was something). My neurologist put me on a three day steroid treatment and suggested I might have progressed to secondary-progressive MS. I was horrified and this got me on my feet.
I had to ‘come out’ to friends and reveal that I had a health problem (I had previously only told family). One friend pointed me to the Gawler Foundation which led me to George Jelinek, his first book Taking Control of Multiple Sclerosis and a week long MS program at the foundation.
I was so relieved when I first read George’s book that I cried. The research was solid and the case for lifestyle change strongly argued. This was combined with George’s touching personal story.
Armed with information and inspiration from the book and the program, I went on my way.
That was in August, 2009. I’m happy to report that I’m doing very well, indeed. I no longer use the stick and I recently went for a six kilometre walk on the Mornington Peninsula.
A final note on serendipity:
The most challenging of all for me is learning about the mind and spirit and how they connect with the body; and the universe?
If I hadn’t had that terrible exacerbation where I couldn’t walk, I wouldn’t have told my friend I have MS and she wouldn’t have told me about the Gawler Foundation, who wouldn’t have led me to George’s book…
Serendipity – no such thing?
- Elizabeth Reichhardt
Jun 2010
Melbourne
bron: www.overcomingmultiplesclerosis.org/Community/What-Others-Say/